One mom’s mission to bring awareness to the rare eye disorder Retinitis Pigmentosa.
Welcome to Never Losing Sight. In early 2014 both of my boys were diagnosed with RP. People with Retinitis Pigmentosa lose their vision slowly over time and eventually become blind. There are no cures or treatments. As a parent, this news was heartbreaking. Imagine being a teenage boy and finding out that one day you will become blind or that you will need assistance getting around. After the initial shock, it made me realize that people do not realize how blessed they are to have their vision. I stay up to date with the latest clinical trials and much improvement has been made, which keeps me hopeful for the future when my boys become independent.
Being a graphic designer/artist, I decided that I wanted to create a website dedicated to my boys. I’ve created many websites for fun, but NeverLosingSight is by far the most important one to me. Social media is huge now days so what better way to spread awareness and use my design skills, than to create a website that truly has a special meaning.
EVERY single day our boys still have their vision is a gift. In the days & years to come I want to remind not just my boys, but everyone to never lose sight of who you are. Never let memories slip away and enjoy every moment of every day. This website is my way of spreading positivity, inspiration & most of all awareness to RP.